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Subject: PD Caregiver Strain Is Not Primarily Due To Motor Symptoms (AAN 2002)

Date: 4/25/2002

E-MOVE reports from the 54th Annual Meeting of the American Academy of Neurology, April 13-20, in Denver Colorado. Poster numbers, session numbers, and pages are from Neurology 2002;58(supplement 7). 
 
Do the clinical features of Parkinson's disease explain spouse caregiver strain? 
JH Carter, KS Lyons, BJ Stewart, P Archibald 
P06.106; A468 
 
Motor symptoms account for less than 10% of caregiver strain in early and mid-stage PD, according to this study. 
 
Two hundred six caregiver spouses (70% female) were surveyed with the Family Care Inventory, which assesses six aspects of caregiver strain: worry, manipulation, tension, frustration due to communication, strain from direct care, and global strain. Patients (mean Hoehn and Yahr stage 2.26) were assessed with UPDRS, Hamilton Depression scale, and Mini Mental State Exam. All clinical features of PD explained only 10-23% of the variance in strain measures, with mental symptoms accounting for 8-14%, and motor symptoms 2-9%. 
 
The authors conclude, "[Our data] suggest that improvement in motor performance is not enough to impact caregiver strain in early and middle stage disease. Even when motor impairment is minimal, clinicians should not assume there is no strain and should look at the caregiver characteristics and the caregiver environment to reduce strain." 
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2002 E-MOVE conference reports are made possible in part through unrestricted educational grants from Elan Pharmaceuticals, Glaxo SmithKline, and Pharmacia Corporation. 
E-MOVE Editor: Richard Robinson, NASW, WE MOVE
 
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